Abigail, Kayla, and Gianna, 2017
OUR MISSION:
Supporting families with an individual affected by Rett syndrome and related disorders by providing financial, emotional, and resource support to enrich their lives.
OUR PURPOSE:
Life doesn't have to stop because of a disability! We have gotten so much fulfillment out of seeing Kayla enjoy adaptive activities and we would love to pass that along to other families.
OUR INSPIRATION:
The foundation was inspired by our youngest daughter, Kayla. When Kayla was diagnosed with Rett syndrome in 2011, we were devastated. We put our lives on hold for a long time. Part of accepting Kayla's diagnosis was the realization that Rett syndrome did not own our family; we were not going to let Rett dictate Kayla's story - we want Kayla to write her own story. She may have Rett, but Rett is not going to define her life. We slowly began to try adaptive activities; horseback riding, then snow skiing, indoor skydiving and surfing. Kayla's sisters, Gianna and Abigail, have been able to participate in activities along side her, and seeing all three of them participate in things together is so gratifying for us. We have all been inspired by Kayla's infectious smile and we want to see others enjoy their journey as much as Kayla.
Let your smile change the world, but don't let the world change your smile.
-Connor Franta